Last week I attended an information morning with Adoption Matters on Foetal Alcohol Syndrome (FASD) and Neglect. The speaker was both a retired social worker, and an adoptive mum. I learnt that both FASD and Neglect can cause brain damage in a child, and can have very similar symptoms. As a prospective adopter, I picked up 3 main tips:
1. Don’t let your child’s difficulties become their failings.
Children affected by FASD and/or neglect will struggle with some things that other children won’t. There is such a wide variety of ways that children can be affected, this isn’t a one size fits all sort of thing. Children may struggle with poor co-ordination, hyperactivity, poor attention span, language development, understanding social situations, mixing reality and fiction, poor problem solving, attachment difficulties, poor academic performance etc. A child’s difficulties will be as unique as they are, and it’s a parent’s job to know them inside out.
A parent needs to know when their child is being disobedient, and when their child is unable to understand instructions. A parent needs to know when a child is being careless and clumsy, and when that child is struggling to control their own body. As you learn how FASD and neglect have affected your child, help them! If your child struggles to follow a list of instructions, don’t set them up to fail! Give them one instruction at a time, teach them ways to remember lists, help order their chaos with them. Our children may always have certain difficulties because in the past adults have failed to care for them. But those failings should never be our children’s failings.
2. Don’t be afraid to stand up for your child.
Many schools and teachers work really hard to help the children in their care learn and flourish. But it’s not always easy. Having a label like FASD can be really useful when it comes to getting school’s attention. A child with difficulties resulting from FASD or neglect may really struggle in a classroom environment. Hypersensitivity to smells and sounds can cause distress if a child becomes over stimulated, or can make it impossible for a child to focus on a task. Having to navigate complex peer relations and follow unspoken rules can be very daunting. Your child needs help, not just from you. They need other people on their side so their difficulties don’t become their failings.
And it’s a parent’s job to get people on side. You know your child best, so educate their teachers! If every child is unique in their strengths and struggles, your child’s teacher will need help to understand your individual child’s difficulties. Give them literature to read, point them in the direction of useful resources, be patient and explain exactly what your child struggles with and how they can help. It could just be things like always sitting at the front of the classroom, help getting changed for P.E., being allowed to leave the room for a quiet moment, a map of the school or a timetable of the day. Teachers won’t always think of these things, so don’t be afraid to help!
There may also be times when you need to really stand up for your child. You may have to go against your nature and be willing to make some noise. But isn’t it better to put yourself in an uncomfortable position, rather than your child? Make those appointments with the Head, ask exactly how your Pupil Premium is being spent, be your child’s advocate.
3. Don’t get distracted by the label.
Yes, labels can be really useful for getting the help and support your child may need. But labels are not the be-all and end-all. There is a lot more to a child than the labels we put on them. Especially a label like FASD, which can mean just about anything! All children, labels or not, will have struggles and difficulties. And all children have beautiful qualities and special gifts.
Enjoy your child’s special gifts, and celebrate their courage.
An adopted child will have experienced too much loss and pain in their little lives. They are brave, they are courageous, they are strong. Celebrate the little triumphs and love them for exactly and completely who they are, labels and all.
I’d love to hear your stories – how have labels helped/hindered your child? How do you enjoy your child’s special gifts and celebrate their courage? Comment below and join the chat!